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Simply Seeing..Or Not....

30/3/2017

4 Comments

 

If you are interested in the AMD thread (5 previous posts under Simply Seeing Or Not) you may like to take a look at the RNIB page, and scroll right down to this video Staying Independent with AMD.

The RNIB is the Royal National Institute for the Blind here in UK.

Unlike the Macular Society  video which I complained about in the previous post with cartoon character Gloria, this video features Shirley, a real person with AMD who lives independently, enjoys audio books, teaches a cookery class for people with a visual impairment (because she didn't want to eat processed food from the microwave). She uses a folding white stick called a 'thimble stick' I think, but not all the time. Mainly when she travels on the London Underground. (Yay! She travels on the London Underground!)

Shirley says the news of AMD was 'horrible'. I'd agree with that. But the choice of language - and I quote here from the Macular Society video - 'fear and devastation' 'terrible plight' and 'little hope' is very different in the RNIB video. Neither is Shirley surrounded by sad little figures in attitudes of despair.

It is worth remembering I think that the condition is not life threatening, though it is clearly life-style threatening

I want to support the Macular Society. They fund much of the research which I hope will find a cure for macular degeneration and other eye diseases.

My last blog post on the topic  Seeing Red was forwarded by the local organiser of a Macular Society group to the Society and elicited a response from Graham Newham of the Society which you can read in the comments on that post. It is good to know my voice is being heard, and I do know mine is not the only dissenting one!


Next post on the topic - Things I wish I had known....




4 Comments
Lotta link
31/3/2017 10:44:14 am

Hi Freda, nice to catch up with your posts. I watched both AMD videos this morning and agree the RNIB one is much better - a positive approach rather than the whole victim thing... (the Macular Society one is truly awful!) I'll be interested to read the things you wish you'd known, and I'm also wondering how it affects your daily life at present, if that's not too personal an enquiry... x

P.S. Re the Kondoing post - if my progress is anything to go by I'd say it's a lifetime's work!

Reply
Freda
1/4/2017 01:06:41 am

Thank you for your comment Lotta - more soon. Do you know I think the end is in sight? The ultimate click point and am excited to see what it makes way for! Keep going!

Reply
Cristiana link
2/4/2017 09:19:18 am

It was very considerate of the Macular Society to reply to you.
Still it puzzles me a bit their approach, I was at a workshop on fundraising a while ago and I clearly remember everyone agreeing that people are more willing to contribute if the message is positive, if the emphasis is on the good things that will happen when you give because ultimately we all wish to have a positive impact in the world. Hope, not fear is the approach the experts there claim to get better results in any fundraising campaigns.

Reply
Freda
2/4/2017 02:10:40 pm

It was considerate Cristiana. I would be interested to know if donations increased (and will ask at a later date!) Thank you for your comment - you are considerate too. x)

Reply



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